I have had this blog now for many years and not been shy describing the affects of the auto immune disease that Mighty Mo has dealt with since the day of his birth. Medically its a version of Colitis but with all cases he has unique affects to his body and medically he is one of the youngest cases doctors have ever seen so some of this is new territory for them to travel as some of the drugs he has been on have never been prescribed to someone so young.
Since last summers "quality/quantity of life scare" Mo has been on some pretty strong drugs for his age. They had been working but the side affects are pretty strong. However, it now seems like a point of diminishing returns. The doctors are not sure if the body is having a problem with the drugs or if the disease is progressing or morphing. Regardless, when his stress levels go up, from physical to emotional to personal perception of a situation, he gets really sick and it causes some violent and painful reactions to his body.
Today, the third Friday in a row, he is having this issue. Unfortunately its the first Friday back to school break., so school called to seek advice. Mo, despite the vomiting, spasms, stabbing pain and whatnot, knows he is not contagious and wants to stay. He figures he is going to feeling bad, might as well stick around. He's a trooper.
Kind of weird territory for Mistress and I. We are not used to his 'mature' input on what he wants to do. At 7 years old, we usually make the decisions for him in his best interest. Here today, he is deciding to stick it out when we would pull him out. So he stays for now.
Everyday he teaches more about dealing with adversity in a positive way than anyone on this planet.
In the next few weeks he going to have a pretty extensive scope. All the way from the top to bottom and bottom to top, from mouth to rectum to check the progress of the condition. There is no cure on management and hope it doesn't get any worse. They will also attach a transmitter inside him while he is under and with a receiver he will wear for 48 hours, every 5 minutes it will transmit data that can be used to further aid our information.
This kid is a super trooper.
4 comments:
I think it's safe for you to say that your kid is a BAD ASS :-)
You are going to need to teach Mo some serious conflict management skills. When he gets older, this blend of kind and funny and game and super-tough is going to cause women to fight each other over him.
Mo sounds amazing!! I didn't realize that he was the same age as my youngest. :>) Keep up the great parenting!! Your influence on him is part of the whole equation! :>)
Amazing young man you have there.
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